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Resources – Sickle Cell Anemia

Kaitlin Atkinson Family Resource Library

CHEO                                                                    Printer Friendly Version
401 Smyth Rd., Ottawa, ON K1H 8L1
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Resource List for Parents

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Resource List for Parents

Hope and destiny: a patient's and parent's guide to Sickle Cell Disease and Sickle Cell Trait / Platt, Allan F. -- Roscoe, IL: Hilton Pub, 2002
This resource provides clear-cut and in-depth information on living with the illness. It offers the information on preventing complications, research, and treatment. The knowledge patients and family members need is organized in an easy-to-read format that promotes overall healthy living.
FAM RJ 416 .S53 P56

Nutrition for the child with sickle cell disease / Willams, Ruth -- Memphis, TN: St. Jude Children's Research Hospital, 1996
This book for children with sickle cell disease contains facts about nutrition, activities to help them learn about nutrition, and a section for parents.
FAM RJ 416 .S53 W54

Sickle cell disease / Peak, Lizbeth. -- Detroit: Lucent Books, 2008.
Discusses the causes, symptoms, and treatment options for sickle cell anemia and describes what populations are predisposed toward the disease.
FAM RC 641.7 .S5 P43 2008

Sickle cell disease / Jones, Phill. -- New York: Chelsea House Publishers, 2008.
Explores the scientific discoveries that led to an understanding of the genetic basis of the disease, explaining how a single mutation in hemoglobin multiplies into the many symptoms of sickle cell disease. Also investigated are treatments that help individuals manage sickle cell disease symptoms, and how gene therapy and stem cell therapy may one day lead to a cure for the disease.
FAM RC 641.7 .S5 J67 2008

Taking control: teenagers living with sickle cell disease / Day, Sara -- Memphis, TN: St. Jude Children's Research Hospital, 1994
This booklet has chapters on the following: an overview of sickle cell disease; pain and infection; general health issues; complications and common treatment options.
FAM RJ 416 .S53 T34 27

Web Sites

Sickle Cell Anemia – MedlinePlus from the U.S. National Library of Medicine

Sickle Cell Anemia – About Kids Health / Anémie falciforme (drépanocytose) : un guide pratique pour les parents – About Kids Health

Sickle Cell Anemia - Kids Health – Information for Kids, Teens and Parents from the Nemours Foundation

Sickle Cell Association of America

What Is Sickle Cell Anemia? – National Heart, Lung and Blood Institute

Sickle Cell Awareness Group of Ontario

Anémie falciforme – Santé et services sociaux Quebec

Association d'anémie falciforme du Québec / Sickle Cell Anemia Association of Quebec

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Local Contacts

Sickle Cell Association of Ontario
4610 Dufferin Street, Suite 205
North York, ON M3H 5S4

Association d'anémie falciforme du Québec / Sickle Cell Anemia Association of Québec
7333, rue Saint-Denis, bureau 3.
Montréal, QC H2R 2E5

This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation.

The guide represents material available in the Family Resource Library collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information.

If you require materials in alternative formats, please contact the library at 613-737-7600 ext. 2157 or at

Last Updated: June 2016
Links Tested: June 2016

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